Brave Peterborough youngster faces major brain operation

Isaac who attends Heltwate school in Bretton is described as a ‘helpful and sweet little boy’.

Each day he runs the risk of having major seizures which have caused multiple hospital admissions.

The lifelong condition has meant Isaac has previously undergone three hour long seizures, been placed into induced comas and on life support.

Now Isaac has the opportunity to alleviate some of his symptoms associated with Sturge Webber Syndrome with the planned brain surgery.

Isaac also has autism, some mobility issues with his foot and some vision problems.

Mum, Louise Stimson (36), faces high costs of accommodation and other expenses, just to be by her son’s side during his time in hospital.

Louise has to leave Isaac’s brother Theo (7) with family as Isaac will spend seven to 10 days in GOSH in recovery post-op.

The high-risk surgery could mean Isaac may lose his speech or his eyesight in his right eye, though mum, Louise said: “If we don’t do this, we may live to regret it.”

Louise added: “It’s been the hardest decision I’ve ever had to make and time with Isaac right now is precious.

“I’m dreading being in the hospital alone with him due to coronavirus restriction.

“I’ve dreaded putting him to sleep which I’ve done multiple times before.

“To put him to sleep with no family member in the room and to leave for the next 10-12 hours is heartbreaking.”

Touched by the generosity of strangers, friends and charities, Louise has found it ‘emotional’ to know so many people are backing Isaac and helping to ease some of the financial burden the family faces.

Family friend Lorren Cope started fundraising as she wanted to help the family by taking away any some of the financial stresses they face.

In 72 hours the target of £1000 has almost been reached!

She said: “He’s a lovely little boy. They just want to give him a better quality of life. There’s a great support network here for her. She’s got all the people she needs, but it’s the financial stress of paying for accommodation, which isn’t provided.”