A baby who looked certain to die after she stopped breathing in her cot has made a miraculous recovery, but her Peterborough family needs to raise funds for treatment to improve her life.
Lillie Klawinska-Disson was not expected to pull through when she was taken to the East Anglia’s Children’s Hospices in Cambridge following the nightmare scenario on 17 July.
However, Lillie, who was six months old at the time, miraculously survived but suffered severe brain trauma because she stopped breathing for at least 24 minutes.
Her family are now aiming to raise £30,000 to fund a procedure known as Hyperbaric Oxygen Therapy - the breathing of pure oxygen in a pressurised room or tube - as well as further treatment to turn her life around.
Lillie’s mum, Sky Disson (23) said: “She surprised everyone because we were making life comfortable for her for end of life.
“As a parent you never give up, you keep yourself in denial and keep yourself going. She’s got a lot better since. Her posture is all to one side but is now much straighter.
“With the right help I’m sure she will be able to at least smile or enjoy the little things in life.
“I’m hoping for her not to be struggling with breathing and smiling and to get a little bit of return so we know what she enjoys.
“You want more. I would love Lillie to run around if that’s possible but at the moment I would be happy to see her smile and say she has a good quality of life.”
Lillie, who lives in Miller Way, Fengate, was found not breathing by her father Peter Klawinska (27) who then called an ambulance and gave her CPR.
“I felt like it was a dream. It’s a parents’ worst nightmare. I was screaming. It’s just the worst thing that can ever happen. I was a complete mess,” said Sky.
Despite her recovery, Lillie cannot move her legs at the moment and finds it hard to do much more than try to breathe.
“She can’t smile because all her energy is spent on breathing,” added Sky.
“She does smile when she’s sleeping because she’s breathing naturally.
“One day you are really positive and others you think about what has happened and why. Most days I am positive but now and again the negative feelings sneak in.”
A fundraising family day event for Lillie takes place on 8 March 2015 at the Cherry Tree pub in Oundle Road. The raffle will include jewellery and a signed Leicester Tigers shirt.
A separate raffle is being drawn on December 21 for two tickets to see Peterborough United play Doncaster at home on December 28.
To apply for the raffle visit the ‘Lillie’s Miracle’ Facebook page and to donate visit www.justgiving.com/Lilliesmiracle/